If you've been searching for answers, you're not alone.
Living with unexplained symptoms can be frustrating, isolating, and exhausting.
Many people living with hypermobile Ehlers-Danlos syndrome (hEDS), Hypermobility Spectrum Disorders (HSD), and other invisible conditions spend years looking for answers. Some are misdiagnosed. Some are dismissed. Some are told that everything is normal despite symptoms that affect every aspect of daily life.
VALID exists because your experience matters.
What you'll find here
VALID provides clear, evidence-based information designed to help you better understand:
- hEDS and HSD
- Invisible conditions
- Common symptoms and associated conditions
- Diagnosis and recognition
- Research and emerging knowledge
- Navigating healthcare systems
- Self-advocacy and validation
Our goal is not to diagnose or replace healthcare professionals.
Our goal is to help you ask better questions, understand your experiences, and feel less alone.
Start here
If you're new to VALID, these resources are a good place to begin:
You deserve to be heard
Symptoms do not become imaginary simply because they are difficult to explain.
Whether you have a diagnosis, are seeking one, or are still searching for answers, we hope VALID helps you feel informed, supported, and understood.
Because invisible doesn't mean imaginary.